March: Madness, Miracles, and Mayhem!

Actually, I probably should have just called this writer’s block.  I am currently suffering from major writer’s block and have a letter that I need to coherently compose and it’s just not working.  So I’m here instead.  Productive, right?

That’s the madness part of the month.  I’m still fighting to get A into a more appropriate setting with the school system and for whatever reason, they just don’t seem to want to listen.  Personally, I no longer care about their reasons, they are attempting to handicap my daughter and I don’t like it.  At least I still have her outside therapy with an amazing team of therapists who helped bring us this far.

And speaking of progress…A has gained 2 pounds since January!  Yes, I am beyond ecstatic about that.  We had a visit with her nutritionist last week and I was rather nervous about how it would go.  Usually, A’s weight gain does not keep pace with her height.  This time, it did.  She has gained enough to put her in the 10th -20th percentile for her BMI, plus, she grew an inch!  I am over the moon and beyond right now.

A has worked so hard and has been eating so well since mid-February I knew she had grown some (the too small pants were my first clue…) but I did not expect a 2 pound increase.  Especially since she lost some weight with the school drama.  She’s doing so well that we are off the DuoCal, down to 1 Pediasure a day (sometimes less), and, best of all, we may be done with nutritional services by mid July if she can keep it up!!

A’s diet has not changed much during this time, but her tolerance for solids has definitely increased.  We have been working with sweet potatoes in both OT and feeding therapy.  In OT she gets to play with her food and in feeding we work on eating the food.  Working with both has greatly decreased her resistance to the potatoes.

Translation:  She no longer screams when you put potatoes in front of her or ask her to touch them.  Major progress.

In the meantime, A is babbling non-stop now and is making great progress with her gross motor skills.  It’s amazing the difference that little bit of weight made for her development and it’s so exciting that she’s finally catching up.

I know she’ll still have bad days and we’ll still have struggles.  Let’s face it, she ate great today, after trying to throw half her breakfast on the floor and partially succeeding (that would be the mayhem).  Yeah, it won’t be easy, but definitely totally worth it.

Now if I could only write that letter this easily…

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