Today’s Forecast…

Sunny with a chance of sudden squalls.  Yep, that about covers life for the past month.  Lots of highs and lows, tears, head-banging (me, not her), and frustration followed by elation.

We have had a great deal of success with potty training.  A knows what the potty is for and about 50% of the time she makes it there before she has an accident.  Some of the accidents are more a result of lack of understanding what she’s trying to tell me than her being distracted by play.  To that end we have been working on some form of system to clear up the lines of communication, but it’s not that easy with a  speech delayed child who has motor planning difficulties.  Fingers are crossed though that something will workout if we try enough.

Unfortunately, A spent most of April battling respiratory infections and asthma issues and lost some weight as a result.  Her hard won pound she had gained over the course of 3 months fell off within 1 week of being able to eat because of her cough and sore throat.  Thankfully, with the help of a medication adjustment to control her asthma and generous amounts of Pediasure she has gained back about half of what she lost.

The hardest part of all this is trying to find higher calorie foods that are not only nutritious but that A will eat.  It would be very easy to fall into the trap of allowing her to eat higher calorie foods that don’t have much of a nutritional value to help her gain weight, just because it’s easier.

Yes, I said it. Sometimes those of us who deal with kids that have these issues contemplate and/or do something that we know may not be the best thing because it is easier.  Sometimes it’s just easier to give them the ice cream than try to introduce them to something that might be a better choice.  Especially after a very long, frustrating, and loud day.  Do I feel like I have done my daughter a disservice by not trying for the umpteenth time to find a way that she will accept avocados or pasta or veggies and dip?  Yes, to a certain extent I do.  But, more importantly, I know that sometimes you have to loose a battle in order to win the war.

I am fighting against something that doesn’t play by any set of rules that we know.  It picks, seemingly randomly, who it affects in families and to what extent it affects them.  No two cases are alike, even within the same family.  I know because my husband has lived with his sensory issues and they are different from what A faces on a daily basis.  There are days when I feel like banging my head against the wall until it hurts would be an improvement on how the day is going.  Other times, A cruises through the day like a “neuro-typical” child and I can’t believe she’s the same child who was screaming over being touched the day before.  Either way, she’s my daughter and I plan on doing everything I can to help her learn to cope with the world around her.

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2 Comments (+add yours?)

  1. Freeman Allcock
    May 22, 2012 @ 14:40:23

    Great site, thanks for share this article with us

    Like

    Reply

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