ORDER UP!

Yep, short order cook.  When you have to make one meal for the rest your family and one for your child, that’s what it feels like.  I have scoured the internet, library, and anyone  who could possibly yield some kind of  information on sensory kids and food ideas with little luck.  It seems that most of what I find relates to children that were preemies or had feeding tubes for one reason or another and are just acclimating to “regular” foods.  Not much help for a toddler who is going to have a lifelong aversion to certain foods because of texture…

When asked by our pediatrician at her check up what my daughter’s diet consists of, I had a moment where I realized that “very little”  could describe it with no trouble.  She won’t eat any type of meat, veggies, eggs (in any form – we tried them all and they all ended up on the floor!), or pasta – to generalize a few common childhood food groups.  That leaves, yogurt, some breads, fruits (but only in certain forms) and crunchy snacks.  Not much room for improvisation there.   Even nutritionists and dietitians are stumped by her.

So, I’m on my own more or less.  Other parents I’ve talked to in the same situation seem to be in just as much of a bind.  What do you feed a child who will only eat one or two types of foods? and how do you make sure they are eating a healthy, balanced diet?

Hopefully, my adventures in finicky feeding land (sounds like a theme park) will work out.  In the meantime, it might at least give a few people a laugh reading about our adventures.

Greetings Wide and Wonderful World!

Yep, I have a blog.  Why?  Because I watched A Smile as Big as the Moon tonight, cried my way through it and ended up here.  Could be worse I suppose.  For those who are confused, the movie was based on a true story about the first group of special education students to attend Space Camp.  As a result, for the first time in a year, I cried about my daughter.  I have a child with special needs.

My daughter, my youngest, was born with something called Sensory Processing Disorder (SPD).  She was not diagnosed until she was 15 months old.  At 12 months she was diagnosed as “failure to thrive” because she wasn’t gaining weight.  Well, she wasn’t gaining weight because she couldn’t eat.  Think of all the standard foods that you would feed a 1 year old.  My daughter choked on almost all of them.  I had a 1 year old who was still eating stage 2 foods and no idea why or what to do for her.

After a going through feeding therapy and learning that she had delayed  oral-motor skills, I began to “take inventory” of anything else that we had just dealt with but maybe wasn’t considered “normal development”.  Turns out there was quite a list.  As a result my husband and I have spent the past year running her to therapy appointments and working with her to gain the bit of progress we have made.

But with all that, tonight was the first time I was actually able to sit down and have a good cry over what this all actually means.  Is it the end of the world?  No, not by any stretch.  It has meant some pretty big changes and a whole lot of improvisation (I knew all those theatre hours would come in handy someday!)

I’m not looking to accomplish much with this blog. I think it’s more a place to put some thoughts out there and maybe collect some new ideas to handle the challenges we face and will be facing as she gets older.  After all, the “terrible twos” are hard enough on their own, but add in textural aversions, tactile and auditory sensitivity, and a whole host of other interesting issues and not even Excedrin makes a pill strong enough for that headache!